ACTION FOR A-T
A-T is short for Ataxia-Telangiectasia which is a neurodegenerative and progressive condition that starts in early childhood causing severe disability and premature death. There is currently no cure for it and nothing that can halt its progression. Babies are born 'normal' and then slowly, from around the age of 5, start to lose their independence. A wheelchair is needed usually by the age of ten, if not before, and in many cases, a feeding tube by the age of 12.
The immune systems of children who suffer from A-T are usually compromised and so they often do not live beyond their teens, usually dying of either cancer or a severe respiratory infection.
Action for A-T's Patron is Jonny Wilkinson and in this short film he explains just why it is such as important charity. Please click here to view.
A-T has been described as having the worst symptoms of four diseases: celebral palsy, muscular dystrophy, cystic fibrosis and cancer. Studies show that children who are affected by this debilitating disease do not lose any of their mental capacity and so over time they effectively become trapped by their deteriorating body.
Action for A-T was set up and launched in January 2012 by two parents who's daughter was diagnosed with A-T at the age of 5. Action for A-T's mission is simple: To speed up the process of identifying a cure for A-T or treatments that delay or prevent the disabling effects of this childhood condition. These parents are doing all they can to try and change the future for their daughter and all the other children who suffer from this brutal condition.